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Fundraising Event 

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SOS EB Kids is a 501 [c] [3] charity that started when a group of friends, made aware of the immense, lifelong suffering borne by patients of Epiderrmolysys bullosa, an incurable genetic disease, felt they had to take action. Body & Mind Pampering & Pilates Day Retreat • took place!! We had an energizing Pilates Mat Class, paired with savory bites, and lastly, a pampering package to go including samples of skincare products to try, offered by physical therapist and beauty consultant, Adriana Benkwitt. This was one FUN event where together we were inspired and motivated while enjoying being pampered. The amazingly talented Patricia van Essche, will be inspiring us by presenting illustrations and art pieces from her new Fall Collection. As part of our 'Pilates Together' initiative, you spend a fun day with us while supporting nonprofits to advocate for their missions, helping them build a better tomorrow. For our first Pampering & Pilates Day Retreat we raised money for SOS EB Kids. SOS EB Kids is a 501 [c] [3] registered in the state of NY that helps children from the most underprivileged sectors of Brazilian society. Treatment is very expensive, complicated, and inaccessible for many, the results of which can be life-threatening for these patients. "SOS EB Kids maintains no links with political parties nor with any religious institutions. We do not judge, we do not pressure and we do not expect anything in return for the supplies we donate. We are an independent organization based on a sense of solidarity alone, moved exclusively xclusively by compassion and by love for our fellow citizens. 100% of proceeds goes to the purchase of wound care supplies and also the programs we have implemented to support the children and their families. No one from our organization receives financial compensation". OCT. 2021

To learn more about the work they do please visit:

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